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To hear more about John Driskell Hopkins, tune in to the Brain & Life Podcast where he shares his story of being diagnosed in 2021 and what he is doing to spread awareness about this rare disease.

PLoS ONE 8 , e60183

Table 7 also lists the extra loss of essential minerals, in terms of the fraction of the Recommended Daily Allowance (RDA) lost each day, based on two reasonable assumptions: 1) averaging the loss between the 1 st and 9 th dose, and 2) assuming a daily urinary excretion of 500 mcg of creatinine, which is typical of a 60-pound child

So it is a real gift and honor to have this knowledge presented to all of us